I read this as a son, and a pastor.
My mother has Alzheimer’s Disease which is a form of dementia. As a pastor, I have had and will have some older members with dementia. A wise pastor won’t stick his head in the sand. Even if you pastor a young congregation, they will have parents who are diagnosed with this horrible disease.
Into this, Dr. John Dunlop wrote Finding Grace in the Face of Dementia. He is a Geriatrics physician. He is too familiar with dementia as a son and a doctor. He writes as a physician with great bedside manner. He’s informative, and gentle. He’s honest but not despairing. He sees God’s sovereignty in a way that calls us to trust His character, His goodness as we suffer.
“All shall work together for good; everything is needful [necessary] that he sends, nothing can be needful [necessary] that he withholds.” John Newton
When God brings dementia into our lives, He has a good purpose. Much of this has to do with trusting Him more fully, finding strength in our union with Christ. His purpose is to mature us, not destroy us. That is how the Enemy wants to use dementia.
Theology bookends this book in many ways, and permeates it. He gets into the nuts and bolts of dementia at a lay level. He addresses diagnosis and whether or not the disease can be prevented and how it can be treated. He addresses both what it is like to have dementia in its various stages, as well as what it is like to be a caregiver in various stages. He offers some helpful hints for caregivers.
He views those who suffer as image bearers which is counter-cultural. In our culture’s human (objective)/person (subjective) dichotomy those who suffer from dementia can be seen as no longer of value since they have no apparent sense of personhood. Dunlop encourages us to remember that they remain image bearers and therefore have value despite diminished capacity. He speaks of some ways to respect that dignity even as the disease strips them of dignity.
He does have a chapter on the church. Dementia isolates people, particularly the caregiver. I’ve seen this with my father as his world shrunk to match my mother’s shrinking world. Churches should be engaged providing familiar faces for relief and encouragement. Faith can also be sustained, or comfort provided by listening to the pastor’s sermons (a familiar voice) or Scripture read by a friend or loved one. Songs from worship can be played ad infinitum and enjoyed by the patient (as the caregiver returns to the early years of parenting).
The toughest chapter is the last, End-of-Life Issues. It was also the most helpful for me in light of my mother’s recent admission to a memory-care facility. She became more than my father could handle. Her world continues to shrink. She has a terminal disease. That shapes, or should, how other diseases are treated. We should keep in mind that “the patient’s quality of life as perceived by the patient may be far better than that perceived by loved ones or the medical establishment.” We project our fears as a person without dementia upon them. None of us would like to be a baby again, but babies don’t mind being babies. People with dementia may not have an awareness of all they have lost, but enjoy life much like infants and toddlers do.
He addresses feeding tubes. They are used because the patient has stopped eating. They often cause more problems than they prevent or address. They often “stop eating because they are dying; they don’t die because they stop eating.” We have to make sure we are doing what is in the patient’s best interest, not ours. There are times to prolong life, but as the disease gets more severe you don’t want to be as aggressive and put them thru a long, lingering death artificially extended. It is heart-breaking and hard.
Dr. Dunlop has provided a good resource for pastors, elders and caregivers (as well as potential victims of this family of diseases). It is succinct and not overly technical. There is a strong focus on how God is graciously at work through the experience of dementia. I found it very helpful, and one of my congregants who read it has as well.