Most books have a story, or I should say stories. There is the story of the book. The story of my book is long and complex and will hopefully come to some sort of resolution soon. There is the story the book tells. But there is also the story of the relationship between the book and the reader.
I was given Coffee with Mom: Caring for a Parent with Dementia by Mike Glenn by one of our deacons and his wife. A very “deaconly” thing to do. This had to have been about a year ago. Occasionally I had time to pick it up. I liked the book, but the book wanted me to face what I really didn’t want to face. Thankfully I was a few thousand miles away. I was actually trying to care for my father who was taking care of my mother.
But things changed when my mom went on hospice care. I began to read more often, which still wasn’t much. After her stroke, I began to read in earnest. That was when I decided I should give my dad a copy.
The book itself is the story of Baptist pastor Mike Glenn as he cared for his mother who suffered from Alzheimer’s and another form of dementia. He gives us background to understand who he was messing with, and who she no longer was.
He started noticing problems when his dad died. He couldn’t tell if the issues were just the grief talking because as points grief and dementia can look alike. But it wasn’t just her grief, it was far more.
His dad had suffered from heart disease and lived far longer than anyone thought he would (largely due to Glenn’s mom). When they were alone his dad would tell Glenn how to care for her after he was gone. There were instructions and promises. She didn’t know about them.
“I talked to a lawyer (she actually did), and he said to write down everything you stole from me. I’m making my list.”
Not that it would have mattered. She was a stubborn woman made more stubborn by a disease that slowly killed you after it killed who you were.
The short chapters of this book tell how he moved her from Alabama to Nashville and made her a ‘prisoner’ in that nursing home. It is about the struggles to care for a woman who doesn’t want to be cared for, only cared about. It is about the unfolding effects of the disease on his mother (no two stories are just alike). It is about realizing that while he’s not his father (as his mother reminded him constantly), “it’s all his fault” meaning he had to be responsible. He struggled to do what was best, not simply what was easy.
“I think I may try another church. I just know too much on this preacher.”
Because it is told largely in narrative it alternates frequently between funny and sad. Glenn has an easy writing style. It almost feels like a Boomer version of Blue Like Jazz but centered on caring for someone rather than trying to figure out who you are.
Since the nursing home was between his home and the church he served, he would stop for coffee with her most mornings. The margins of the book contain sharp little comments she makes. They are funny, unless they are said to you. It isn’t easy to love and care for people with dementia. To make it worse (I think) she never forgot who he was. This meant she knew how to hurt him until the end. But she sounds very much like Lord Crawley’s mother, Violet, on Downton Abbey.
“I tried to raise you right. I really did, but you turned out all wrong.”
The final chapter is about your more basic relationship with God and your parents. It is titled Loving Your Parents When You Don’t Really Like Them. He begins with discussing the command in Ephesians 6 for parents not to exasperate their children. Many parents frustrate and even harm their children. As parents they shape their kids’ first understandings of God. When you are a complete jerk (or absent, unempathetic…), your kids think God is a complete jerk (or absent, unempathetic …). When you’ve been sinned against by your parents, and we all have because they are sinners, you have to deal with that. Some of the damage is bigger and deeper. He is a fool who tries to navigate this on his own. He is a fool who tries to navigate this on the basis of justice instead of mercy.
“Of course I slept well. I have a very clean conscience. How well did you sleep?”
Here his theological leanings show up: “each person must give Christ permission to work.” I get what he seems to be trying to say, but… God’s great work in a person begins with regeneration. Apart from that we are so spiritually messed up we hate God and the truth. We won’t believe. Regeneration is the granting of a new heart so now one wants God to work. God works first so I’ll want Him to work. We also have to recognize that due to remaining or indwelling sin, we still want to hold things against them at times. We want our pound of flesh because the flesh (sinful nature) and Spirit are in conflict with one another inside us. But he isn’t trying to lay out all the theology involved in this. He’s trying to bring you to Jesus whom you need desperately for more than your daddy and mommy issues.
“You’re running a little late this morning, but you’re a Baptist preacher. You don’t know anything about time.”
He recognizes that some parents do so much damage they just can’t be trusted: sexual or physical abuse for instance. Most parents try their best and fail. Others are malevolent and delight in damaging their children. Forgive them but as a counseling professor of mine said, keep the screen door to your life closed. Let them see in (have a relationship) but not come in to continue damaging you or your family.
“Your sermon was short. After all week, I thought you would’ve come up with a little more.”
He then shifts to the fifth commandment: Honor your father and your mother. This is the first commandment with a promise. This commandment is about you as a child, a son or daughter. It is not about your parents. People who love God and honor Him will honor their parents as a result. The vertical relationship determines the horizontal relationships. He fleshes this out in terms of gratitude (they gave you life, and often much more). Secondly, forgive them as you’ve been forgiven (Eph. 4:32). They may not even ask for it but forgive their debt to you. Just as God’s kindness led you to repentance, so yours may lead them to repentance. Forgiveness doesn’t mean you don’t talk about it or give them full access to your life (reconciliation).
“Forgiveness, simply put, is releasing the other person from the expectation they can fix what they did.”
Third, he mentions not hurting them. We forsake revenge even if they don’t repent. We aren’t in the making them pay business. Glenn could have mentioned it is God’s right and duty to repay, so we can rest in that (Rom. 12). Our job isn’t to judge them. Like a physician, do no harm even though you may limit contact. You may not have them over for Christmas, but you can send a card (that doesn’t curse them).
“Let’s go back to the heart of this commandment. This is about you, not your parents. This is about the type of person you are and what you believe about redemption, grace, forgiveness, mercy and love. This is where our theology of Easter is tested.”
I gained a better understanding of what my father experienced. I also gained a better understanding of her experience. So this book allows you to both grieve and grow in compassion. I’m leaving my copy with my father in the hopes it helps him sort through the last few years of his life, grieving the many losses he experienced over the last 7 years.
“I heard you had the flu … I was praying for something worse.”
With all the recollections this is a helpful book not only for caregivers but for pastors, elders and deacons to help care for caregivers. I’m thankful my deacon and his wife cared enough about me to give me a copy. I’m leaving it behind for my dad. I may even buy another for my brother who checks in on him.